
Together we end als
About the als super fund
Learn from ALS Action Canada board member and former NHLer, Mark Kirton, as he discusses the importance of supporting the ALS Super Fund.
Our purpose
The ALS Super Fund will support ALS initiatives worldwide, from research funding to patient support, with the goal being to ultimately lead to breakthroughs to End ALS. This collaborative effort will ensure that all people have equitable access to treatments and trials as we urgently pursue an end to the disease.
Our story
The ALS Super Fund was created by the patient-led group ALS Action Canada and hosted by Charitable Impact. Comprised of a panel of ALS experts that direct funds toward projects that will have meaningful impact, it is part of this patient-led movement which will ensure that policy and research decisions in North America reflect the voices and perspectives of those most affected by ALS.
the super fund advisory council
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Don Wright
ALS Action Canada Chairman, Senior Public Sector Executive
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Dr. Colleen O’Connell
Physiatrist, Prof. Dalhousie University Faculty of Medicine, Medical Director and Research Chief at Horizon’s Stan Cassidy Centre, Fredericton, New Brunswick
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Dr. Angela Genge
Neurologist/Dir. ALS Centre of Excellence for Research & Patient care at McGill University, Montréal, Québec
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Dr. Lorrne Zinman
Neurologist/Associate Scientist/Dir. Sunnybrook Health Sciences Centre, Toronto Ontario